“Everyone needs rehab, but…”: exploring post-stroke rehabilitation referral and acceptance decisions
Kerry Marnane, Louise Gustafsson, Sally Bennett, Ingrid Rosbergen & Rohan Grimley
Purpose: To explore the decision-making processes and experiences of acute and rehabilitation clinicians, regarding referral and acceptance of patients to rehabilitation after stroke.
Materials and methods: Multi-site rapid ethnography, involving observation of multidisciplinary case conferences, interviews with acute stroke and rehabilitation clinicians, and review of key documents within five (5) acute stroke units (ASUs) in Queensland, Australia. A cyclical, inductive content analysis was performed.
Results: Seven key themes were identified, revealing the complex nature of post-stroke rehabilitation referral and acceptance decision making. Although the majority of clinicians felt that all patients could benefit from rehabilitation, they acknowledged this could not always be the case. Rehabilitation potential and goals were considered by clinicians, but decision making was impacted by ASU context and team processes, rehabilitation service availability and access procedures, and the relationships between the acute and rehabilitation clinicians. Patients and families were not actively involved in the decision-making processes.
Conclusions: Post-stroke rehabilitation decision making in Queensland, Australia involves complex processes and compromise. Decisions are not based solely on patients’ rehabilitation needs, and patients and families are not actively involved in the decision-making process. Mechanisms are required to streamline access procedures, and improve shared decision making with patients.
IMPLICATIONS FOR REHABILITATION
Referral decision making for post-stroke rehabilitation is complex and not always based solely on patients’ needs.
Clear and straightforward access procedures and positive relationships between acute and rehabilitation clinicians have a positive impact on referral decision making.
Stroke services should review their processes to ensure shared decision making is facilitated when patients require access to rehabilitation.